Decisions, Decisions

We just got word today that the government is not going to give us the special PGB allowance for handicapped children, with which we were hoping to be able to pay people to “volunteer” for Ezras program. Ezra has to stay home because there is no school for him here that he can attend in English. The international school said: “We don’t want a child with problems”. The school in The Hague would take him for 18,000 Euros tuition a year, which we of course do not have. When I talked to the person responsible in the CIZ she said, he should be going to school even if he is handicapped. That he doesn’t speak Dutch is not their problem. Fact is however, there is no Dutch school that will take him either, because in order to go to a special needs school you have to have 6 months reports from speech therapists and other therapists, which he never got, because…they speak Dutch. Essentially the CIZ has a set of rules and just apply them without exception, even when the case doesn’t fit their descriptions like Ezra. Honestly I’m so tired of hitting walls in this country. And lets stop beating around the bush. I hate Dutch bureaucracy. OK, sure, if I was in the States, I would be fighting insurance companies, possibly with outsourced Indian customer service employees. However, there would be help school wise. Clearly the people working at CIZ simply don’t understand what it is like to have an autistic child. It’s a little bit like trying to explain to someone who doesn’t have children what it is like to have a child. There are certain experiences that words simply can’t adequately describe for any other person to truly know what it’s like to have a special needs child. My In-Laws moved to the Netherlands a year ago to help us with the Son-Rise program. They have come over to work with Ezra in the playroom, they’ve spent countless hours taking care of the kids, even a whole week with both kids together while we were in training. And even after all that they still don’t fully understand what it is like. And perhaps one doesn’t need to understand, but I think if the people who work in these organizations did, it would be a very different experience.

One thought on “Decisions, Decisions

  1. how sad is this..

    i really hope that you can find someone who just do whatever he or she can do to make sure that you get what you need. just because ezra is a wonderful boy!!!


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